Yes! Me! I was 18 when I got my kidney transplant and all that prednisone gave me AVN in both Talus. I got leg braces made I started college and guys were carrying me to class 😂 BUT! They repaired themselves and got their vascular activity back! That was 25 years ago! And while is still have AVN in my left hip, with collapsed femoral head, it’s not too bad! I have put off getting it replaced. I can wear heels 👠 for a couple hours lol. Funny that’s how we gage our bone disease as women 😅
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u/coldjesusbeer
Similar experience. Got diagnosed with AVN of the tibia, talus, and heel. Went non-weight-bearing in a boot for the better part of 6 months per doctor's orders.
The pain went from challenging to excruciating after the boot. Doctors told me there was nothing they could do for me.
Stopped the boot entirely. Started getting back on my bike and becoming physically active again. Moved to NYC where I walk everywhere.
Daily pain is gone 3 years later. I wear heels again. Gotta be careful walking down hills or carrying my bike downstairs, but other than that, I have my life back.
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u/showmenemelda
I knew time travel was real! Tell me, is 2038 better?! ?
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u/Mysterious-Belt-2992
I know you mean 2017, right? ?
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u/mangoawaynow
wait can i DM you? I wanted to ask some questions because both of my ankles are cooked 🥲 and not hella people have it in the talus bone ?
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u/radicalelk
Fellow talus AVN gal 👋🏼 mine is from an injury though. I got my debridement in September, they did a Brostrom repair for instability at the same time. I do NOT regret the debridement - that deep shocking pain is near gone! However I do regret the brostrom repair. My ankle is still significantly swollen, and 2 miles is my limit for walks still (though I can lift!). Hoping for some relief there in the coming months. Surgeon suggested a full year is needed for bounce back.
Anyways, thank you for sharing your story. My original doctor also gave me my diagnosis very grimly. It has been such an odd experience.