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Subreddit: r/Sjogrens clear
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1r/SjogrensSwollen legs and face?pinkie_ladybug420%4561.1negativeimmunomodulation2026-03-21
commentercommentsentimentupvotes
u/Missing-the-sunOh my gosh, you need to see a doctor. Like now. Swelling in the legs AND face is edema, when it swells and you can push it and it doesn’t refill it’s called pitted edema, and it’s caused by an overload of fluid in your lymphatic system. While it can be caused by a number of things, you NEED to get checked for heart and kidney issues and clots/vascular issues ASAP if this is new onset and unexplained. This degree of swelling can injure your kidneys. If this is new for you, it is an ER level collection of symptoms.negative22
u/Karma-ElectronI had this on my lower leg and was diagnosed with vasculitis. I didn't get any meds and it resolved by itself in a year. But I had a milder case with less edema. Good luck. It's so frustrating to have our bodies betray us like this!neutral10
u/Bright_Treacle1353I’ve had similar I have this a lot you need to evaluate ALLLLL new meds not later NOW! Make sure you are not having Steven’s John’s syndrome NOW! And make sure it’s not an allergic too! Then and only then treat it as an autoimmune and ask them for steroids stat. Go see a doctor blood draw asap if this this happened before. Please check the first twonegative7
u/notroundupreadyI wouldn’t take prednisone until I went to the er. Prednisone makes my liver enzymes skyrocketnegative7
u/randomdecemberthis might be vasculitis. does your rheum office have a provider on call? they may advise urgent care or ER. ?negative7
u/Alternative-OrangeHi! I have sjogrens and vasculitis. I often get legs like this but nothing on the face. I am currently trying different medications for it through my rheum but nothing has worked so far. I have had multiple incidents where I've ended up in A&E as it's got so bad and swollen and they haven't understood what it is and prescribed steroids. It hasn't worked for me.negative5
u/zengal108I had something similar when they put me on plaquenil. Turns out I was super allergic.negative5
u/AsanethI get a somewhat similar rash (red and blotchy) only on the tops of my feet and my shins. They say probably vasculitis, but aren't positive at all. My rash can get super itchy if I don't treat it as soon as it starts to show up. No topical works, and steroids don't work, but for some reason hydroxizine at least takes the insane itching away. I was taking hydroxizine for something totally unrelated, and noticed that the itch lessened and resolved after I took it. Doctors listened to me, and now I have an hydroxizine RX just for the rash. If you want to see what my rash looks like, google Hypergammaglobulinemic Purpura of Waldenstrom. That's what I actually think it is, but docs disagree.negative4
u/bigfattushyI had this for years! Only thing that helped was compression socks until I got rituximab. I still get it a little but nowhere near as much. Ibuprofen and elevation when it's really swollen.positive4
u/Additional-Yard1410I've had this randomly over the years on my legs and feet I was told mild vasculitis purpura/petechiae which came and went,  then went to emergency with a bad episode over my calf swollen up but this time they tested me for pulmonary embolism (d dimer), but it was cellulitis according to the sonographer. Had some antibiotics & it went. I'd say you could have autoimmune vasculitis and need to see a doctor.negative1